Dizzy Spells – Dizzyness

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The MS specialist I recently consulted for a second opinion was terrific. She was very thorough, a great listener, and she genuinely seemed to care.

I loved everything about her – except one thing: her liberal use of the term “benign MS.”

She’s not the first to characterize my illness in this way. My own neurologist has done the same. And on the surface, it would seem to be an apt description. Apart from a drop foot, I have no mobility issues and I’m not visibly disabled in any way.

Anyone with a score of 3.0 or less on the Expanded Disability Status Scale (EDSS) at least 10 years after the onset of disease has traditionally been labelled “benign.” And technically, I fall within this category. After more than 20 years of living with this illness, I’m a 2.5 on the EDSS – where 0 means no disability and 10 means death. There’s no question that I’m doing well.

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